Oxford Textbook of Palliative Care for Children 2nd Edition

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The first edition of this book was the first authoritative, systematic and comprehensive text to define the increasingly important and evolving specialty of paediatric palliative care. It explores both the clinical aspects and the multidimensional and holistic nature of care for the dying child, based on the knowledge that all human experience has a physical, emotional, psychological and spiritual impact. The book covers ways of providing support in all of these areas both for the child, families, and carers, recognising the importance of teamwork and taking an evidence-based approach. The Oxford Textbook of Palliative Care for Children is about the care of children for whom cure of their underlying disease is not possible. It encompasses the physical management of symptoms such as pain and nausea, as well as social issues such as accessing appropriate education, emotional issues such as techniques for communication, and spiritual issues such as feelings of guilt and isolation. The book suggests that if we are to maintain the quality of life for a child it is essential to recognise all these dimensions and try to address them. This can only be done by recognising the skills of a wide range of professionals and working together in ways that are not always intuitive to any one discipline. It explores the multidimensional and holistic nature of care for the dying child. Those working in paediatric palliative care recognise that all human experience has emotional, psychological and spiritual impact as well as physical, and this book offers the essential information needed for those involved in paediatric care to find ways of providing support in all of these areas. Comprehensive in scope, exhaustive in detail, and definitive in authority, this second edition has been thoroughly updated to cover new practices, current epidemiological data and the evolving models that support the delivery of palliative medicine to children. Paediatric palliative care is now developing in countries with differing health care systems, and being adapted to suit individual illnesses and the varying resources and geography in different parts of the world. This book is an essential resource for anyone who works with children worldwide. Salient Features 2 colour text throughout, with a full colour plate of section. The first definitive textbook on the subject of paediatric palliative care. Identifies the medical, psychological, practical and spiritual issues of caring for terminally ill children and their families. Promotes a model of care that addresses the complex and multifaceted needs of children with life-threatening illnesses and their families. About the Author Ann Goldman is Consultant in Paediatric Palliative Care at Great Ormond Street Hospital, in London, UK. Richard Hain is Senior Lecturer in Paediatric Palliative Care at the University of Wales College of Medicine in Cardiff, UK. Stephen Liben is Director of the Palliative Care Program at The Montreal Children's Hospital in Canada.

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1. Katrina McNamara-Goodger and Chris Feudtner: History and epidemiology 2. Jenny L. Hynson: The child's journey: Transition from health to ill-health 3. Jennifer W Mack and Stephen Liben: Communication 4. Vic Larcher and Frank Carnevale: Ethics 5. Sandra Bertman: Through the creative lens of the artist: Society's perceptions of death in children 6. Nancy Contro and Sarah Scofield: The power of their voices: asessing the child and family 7. Myra Bluebond-Langner and Megan Nordquest Schwallie: Children's views of death 8. Jan Aldridge and Barbara M Sourkes: The psychological impact of life-limiting conditions on the child 9. Finella Craig and Victoria Lidstone: Adolescents and young adults 10. Trygve Aasgaard and Melinda Edwards: Children expressing themselves 11. Erica Brown: Education and school 12. Susie Lapwood and Ann Goldman: Impact on the family 13. Robert Macauley and Cynda Hylton Rushton: Spirituality and meaning in children, families, and clinicians 14. Erica Brown and Frances Dominica: Around the time of death - culture, religion and ritual 15. Sara Portnoy and Di Stubbs: Bereavement 16. Dilini Rajapaske and Maggie Comac: Symptoms in life-threatening illness: overview and assessment 17. Nigel Ballantine and Elizabeth Bing Daglish: Using medications in children 18. Antoine Bioy and Chantal Wood: Introduction to pain 19. Anne Hunt: Pain assessment 20. Richard D. W. Hain, Ross Drake, and Stefan J. Friedrichsdorf: Pharmacological approaches to pain: 'By the ladder' - the WHO approach to management of pain in palliative care 21. Ross Drake, Stefan J. Friedrichsdorf and Richard D. W. Hain: Pharmacological approaches to pain: Simple analgesics and opioids 22. Renee McCulloch: Pain: Adjuvants for neuropathic and bone pain 23. Leora Kuttner: Pain: An integrative approach 24. Mike Miller and Marek Karwacki: Management of the gastro-intestinal tract in paediatric palliative medicine 25. Angela Thompson, Anita MacDonald, and Chris Holden: Feeding in palliative care 26. Julie M. Hauer and Kate W. Faulkner: Neurological and neuromuscular conditions and symptoms 27. Anna C. Muriel, Renée C. V. McCulloch, and Jim F. Hammel: Depression, anxiety, and delirium 28. Lynda Brook, Emma Twigg and Amanda Venables: Respiratory symptoms 29. Yi Fan Liang and Jacqueline Denyer: Skin symptoms 30. Mei-Yoke Chan: Haematological symptoms 31. Michelle Meiring and Rene Albertyn: Palliative care for children with hiv/aids 32. Dawn Davies and Rachel Parry: Care in the final hours and days 33. Angela M. Johnson and David M. Steinhorn: Integrative medicine in paediatric palliative care 34. Jan Vickers and Jody Chrastek: Place of care 35. Brian Carter and Finella Craig: Intensive care units 36. Danai Papadatou: The good-enough health care provider 37. Linda Ferguson, Susan Fowler-Kerry and Richard Hain: Education 38. Javier R. Kane and Justin N. Baker: Quality improvement 39. Joanne Wolfe and Hal Siden: Research in pediatric palliative care 40. Joan Marston and Lizzie Chambers: International aspects Formulary